Mellow yellow Monday: Rare disease day

http://mellowyellowmonday.blogspot.com/
My friend Ellen and fellow bereaved mum sent me this email.
In loving memory of our two children (Avery and Addison Crompton) , who died from Campomelic Dysplasia.

My late baby son, Andrew died of the same CD 21 years ago.
http://groups.yahoo.com/group/campomelicfamilies/

Feb 28th is Rare Disease Day! To learn more, go to:

http://www.rarediseaseday.org/

Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the national level

February 28th 2011 will mark the fourth International Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 countries. On that day hundreds of patient organisations from more than 40 countries worldwide will be organising awareness-raising activities and converging around the slogan “Rare but Equal”.

Hundreds of patient groups and their partners, coordinated by national alliances at the country level, are planning a multitude of events to draw attention to rare diseases and the millions of people who are affected by them. Awareness-raising activities are being planned across Europe, all the way to Russia, Georgia and Armenia, as well as in the US, Canada and as far as Australia, New Zealand, China and Japan!


http://www.rarediseaseday.org.nz/
The New Zealand Organisation for Rare Disorders (NZORD)

PO Box 38-538,

Wellington Mail Centre

Phone: +64 4 471 2226

Email: enquiries@nzord.org.nz